RJ Mitte, best known for playing Walt White Jr in the award-winning drama Breaking Bad, has died at the age of 34. The actor ...

There is a mother I have known by sight since my child was in kindergarten.We had only ever exchanged greetings, but during a ...

Jordan Routch had never heard of Friedreich’s ataxia, but he’s running the Buffalo Creek half marathon to raise awareness ...

When I first developed autonomic ataxia, I lived my life thinking only about recovering my physical health.Although I am ...

Researchers have identified covert deletions of the proximal FXN gene that standard testing mistakes for identical repeat ...

The wife of Mike Evans, 33, is calling for NHS to provide Skyclarys to help those living with Friedreich's ataxia.

T, is one of the most devastating genome-instability disorders known to medicine. Children born with the condition face ...

La dificultad para caminar, perder el equilibrio o notar que los movimientos se vuelven torpes puede parecer un problema pasajero, pero en algunos casos está relacionada con una alteración del sistema ...

A demonstration has taken place in Dublin city centre calling on the HSE to approve reimbursement for Skyclarys, a drug used to treat Friedreich's ataxia. Campaigners gathered in their hundreds at the ...

The Health Service Executive has approved the reimbursement of the drug Skyclarys for people with Friedreich's Ataxia. It follows a substantially improved financial offer by drug firm Biogen to the ...

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The Drumlish family will be heading to tomorrow's protest in the capital, in a final bid to call on the HSE to approve the life-changing drug. Securing Skyclarys would allow two Longford children with ...